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Education on SCD was given to students in almost all Health Training Institutions and Senior High Schools in the three regions.Informal Education: The approach used was community based health education.These two major events bring hope to all those battling the sickle cycle of recurrent pain and complications. It looks at the challenges across all aspects of the sickle cell condition; from pre-conception to living and caring for people with the sickle cell condition and their families.Currently, there are 198 active research studies listed at We have come a long way in 40 years but more is needed to bring a cure for all. This paper is a report on Sickle Cell Advocacy Project in the three Northern regions of Ghana, executed by by SICCA in collaboration with the Ministries of Health and Education and endorsed by the Ghana Academy of Arts and Sciences.

Patients were assigned randomly to treatment with Endari or placebo, and the effect of treatment was evaluated over 48 weeks. In Ghana about 2% of newborns have sickle cell disease which translates to about 16,000 to 18,000 children born annually with SCD, with 20% – 25 % born as trait or carriers.This may reflect a lack of access to high-quality comprehensive care for adults with SCD in the US. Gifty Tina Naa Ayeley Mensah Corresponding Author: Email: [email protected] 2017 two notable advances happened: In July the FDA approved Endari or L-glutamine oral powder to Emmaus Medical Inc for use as a preventative in sickle cell patients 5 years and older. Website Sickle Cell Disease (SCD) is the most common serious genetic disease in Africa.Sickle Cell News for January 2018– To join or leave the listserv visit Stopping the Sickle Cycle – Where are we?By Allan Platt PA-C, MMSc In 1977, the published life expectancy for a sickle cell disease patient was mid-teens.

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CONCLUSION Great changes in Sickle Cell awareness was created in three northern regions of Ghana through this Advocacy Project.